The Multidisciplinary Expert System for the Assessment & Management of Complex Brain Disorders (MES-CoBraD) is an interdisciplinary project. It combines Real-World Data (RWD) from multiple clinical and consumer sources through comprehensive, cost-efficient, and fast protocols to improve diagnostic accuracy and therapeutic outcomes in people with Complex Brain Disorders (CoBraD), as reflected in Neurocognitive (Dementia), Sleep, and Seizure (Epilepsy) disorders and their interdependence.
The project brings together clinical information and scientific research in CoBraD with technical innovation in secure data-sharing platforms, artificial intelligence algorithms, expert systems of precision and personalised care, and advanced data analytics. Throughout the project, there is a clear focus on improving the quality of life of patients, their caregivers, and society at large. This is done by leveraging RWD from diverse CoBraD populations across cultural, socioeconomic, educational, and health system backgrounds, with special attention on including vulnerable populations and minorities in an equitable manner and engaging key stakeholders to maximise project impact.
LIBER leads project activities related to stakeholder engagement activities and opportunity-based dissemination. LIBER also participates and supports the development of legal and ethical frameworks, landscape analysis and methodology, RWD acquisition pilots, and awareness-raising, dissemination and communication.
LIBER’s participation helps ensure that members within the library community stay up to date with the project’s cutting-edge usage and innovation with RWD and data management. Furthermore, the project aims to engage citizen scientists throughout the project cycle and LIBER’s network will help facilitate this objective.